Dystonia Europe participated at “Shaping the Future: Policy Responses to Neurological Challenges” 19 February 2025 at the European Parliament, a meeting of the MEP Interest Group on Brain Health and Neurological Conditions at the European Parliament this week, kindly hosted by Billy Kelleher MEP. This meeting was arranged by EFNA (European Federation of Neurological Associations)….
New Podcast Episode: Amybel Taylor on the pros and cons of DBS surgery for dystonia
In this episode, we sit down with DBS patient Amybel Taylor as she shares her journey of being diagnosed with dystonia at a very young age. After years of living with the condition, Amybel, with the support of her parents, made the life-changing decision to undergo DBS surgery. Now in her early 30s, she has…
New Podcast Episode: Mikko Juutinen on Pivoting Your Career and Hobbies With Dystonia
In the latest episode of ‘The Positive Twist’ podcast we meet Dr Mikko Juutinen, a former practicing dentist who has been diagnosed with dystonia in his hands, legs, calves and back. His diagnosis has led to pivoting in his career, as well as in some of his hobbies. Listen to this inspiring story of overcoming…
Upcoming webinar on “Children, Dystonia & DBS” – Wednesday, January 29, 2025
We are excited to share that Dystonia Europe is hosting an upcoming webinar focusing on “Children, Dystonia & DBS”. This event, taking place on Wednesday, January 29, frmo 18.00-19.30hrs CET, promises to shed light on important aspects surrounding childhood dystonia and the potential benefits of Deep Brain Stimulation (DBS) procedures. Childhood dystonia can present unique…
Online Dystonia Day Conference September 2024
The Dystonia Europe Board decided that this year our annual conference day would be held online using zoom. We used this method during the covid restrictions and not only did it work really well it was also a great deal cheaper than a face to face meeting. We all still prefer face to face meetings…
