September 1, 2024

On-line Dystonia Day 2024

We are delighted to announce our upcoming on-line Dystonia Day on 21 September on Zoom from 10.00 until 13.40. We will hear dystonia expert speakers and a patient testimony. There will also be the possibility to ask questions. Link to registration and the event will be available soon. Program 2024 final    

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July 8, 2024

Discovering a Missing Piece of the Dystonia Jigsaw: An International Collaboration on Understanding Brain Glucose Activity Patterns in Children and Young People with Dystonia

By Dr Jean-Pierre Lin, Evelina London Children’s Hospital, London, UK The award of the Dystonia Europe David Marsden Prize to Dr Stavros Tsagkaris represents a significant recognition of the importance of our work in investigating brain activity patterns in childhood and adolescent dystonias1, 2 representing a 20-year project to carefully unravel the mechanisms of dystonia…

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July 8, 2024

Dr. Stavros Tsagkaris Receives the David Marsden Award 2024

Our congratulations to Dr. Stavros Tsagkaris, from the Evelina London Children’s Hospital in London, UK and the David Marsden Award 2024 for his paper: Metabolic Patterns in Brain 18F-fluorodeoxyglucose PET Relate to Aetiology in Paediatric Dystonia On Saturday 29 June Dr. Tsagkaris was presented with the award by Dystonia Europe Executive Director Monika Benson at…

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May 19, 2024

Cervical Dystonia Patient Journey

The cervical dystonia patient journey was published two years ago. Currently is is being translated into more languages. These are published on the ERN-RND (The European Reference Network for Rare Neurological Diseases) website. https://www.ern-rnd.eu/disease-knowledge-hub/dystonia/ We hope that this patient experience map will support patients who are newly diagnosed as well as other dystonia patients and…

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