EPF (European Patient Forum) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe.
Dystonia Europe, who is a member of EPF, participates in a series of 5 webinars within Digital Health that is initiated and held by EPF. Health is an area which Europe can benefit from, during the digital data and Artificial Intelligence revolution.
As EPF states on their website “The road to fully exploit the potential benefits of data in health is only partially built, still extremely fragmented and not yet developed with patients’ views at the centre”.
The 1st webinar “Digital Health 101” was held in June and the 2nd webinar “The Role of Health Data in Medicines Regulation” in July. Dystonia Europe continues to follow these webinars, which will be a total of 5 this year. These webinars are for EPF members. The next webinar within Digital Health will be in September.
Merete Avery, 
Dystonia Europe
