What is your name? Elizabeth Cunningham
What are the benefits of working within a patient organization?
I have been a communications professional with patient organisations for ten years and find it extremely rewarding. I came to this career because I live with a chronic neurological condition (migraine). From an early age, I knew that my best option would be to be self-employed, as I needed a level of flexibility that working in many companies could not offer.
Initially, I worked as a digital media developer with corporate clients, but I never found that work truly fulfilling. Working with patient organisations changed that. The primary difference is the people. I have the pleasure of working with and for wonderful people, and I feel that my work can have a positive impact.
What keeps you motivated?
Unfortunately, my migraine attacks are frequent and often mean that I need to spend days in bed in the darkness. To keep motivated, I remind myself that the attack will pass and that although I can’t do what I want on that day, there will be another opportunity.
Once I am well, I have so much appreciation for being pain-free that I try to make the most of life! I enjoy family time with my husband and little girl, and I make sure to have some ‘me’ time, when I like to make ceramics at a local studio.
What makes you frustrated?
It is frustrating to see that stigma remains a huge issue for those affected by neurological conditions, including dystonia. I am impatient for the day when better understanding at all levels of society will mean people are treated and respected as equals. Equality must extend to all areas, including affordable access to treatments for all, regardless of where they live.
Elizabeth Cunningham, Communications Manager,Dystonia Europe
And Senior Communications Manager, EFNA
Elizabeth and her daughter Holly
