Last Saturday the Belgian Dystonia Association had invited its members to a meeting at the university hospital in Bruges, Belgium. After a welcome address from Frans Vanderstraeten the first speaker was introduced. Professor Santos from Bruges gave an interesting overview of dystonia in various areas such as genetics, non-motor symptoms and treatment. Following the coffee break Monika Benson spoke about ”Dystonia – from a patient point of view”. She shared her personal story and then moved on to talk about Dystonia Europe, its activities and projects, also explaining MyDystonia, the digital dystonia diary. At the end of the meeting all 40 participants gathered in a JUMP for Dystonia.
Many thanks to the Belgian Dystonia Associatio, and to Merz for the support in organizing this meeting.
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- Board of the Belgian Dystonia Association together with speakers and sponsor representative from Merz.
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- Jump for Dystonia Belgium!
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- Monika Benson
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- Frans Vanderstraeten
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- Prof Santos
