| Country | Organisation | Website / Contact |
|---|---|---|
| CANADA | DMRF Dystonia Medical Research Foundation, Canada | www.dystoniacanada.org English: info@dystoniacanada.org French: partagedystonie@gmail.com |
| USA | DMRF Dystonia Medical Research Foundation, USA | www.dystonia-foundation.org dystonia@dystonia-foundation.org |
| USA | BEBRF Benign Essential Blepharospasm Research Foundation | www.blepharospasm.org www.blepharospasm.org/contact-us.html (Langueses: Español/Italiano/Français/Korean) |
| USA | National Spasmodic Dysphonia Association | www.dysphonia.org nsda@dysphonia.org |
| USA | Tyler’s Hope for a Dystonia Cure | www.tylershope.org info@tylershope.org |
| USA | CDN Cure Dystonia Now | www.curedystonianow.org info@curedystonianow.org |
| USA | Down with Dystonia | www.downwithdystonia.org info@downwithdystonia.org |
| USA | Dystonia Coalition - Rare Diseases Network - Dystonia | www.rarediseasesnetwork.org dystoniacoalition@emory.edu |
Note: If you find incorrect information or know a dystonia organization that is not on our list please contact us: sec@dystonia-europe.org
