| Country | Organisation | Website / Contact |
|---|---|---|
| EUROPEAN UMBRELLA ORGANISATION | Dystonia Europe | www.dystonia-europe.org sec@dystonia-europe.org |
| AUSTRIA | ÖDG Österreichische Dystonie Gesellschaft | www.dystonie.at https://www.dystonie.at/OeDG-Kontaktformular/ |
| BELGIUM | Belgische Vereniging voor Dystoniepatiënten vzw | www.dystonie.be info@dystonie.be |
| CROATIA | HUBPP Hrvatska Grupa Za Istrazivanje Distonije | www.hubpp.mef.hr http://hubpp.mef.hr/en/kontakt/ |
| CZECH REPUBIC | Dystonie-rodina spolu, z.s. | www.dystonia.cz dystonia@dystonia.cz |
| DENMARK | Dansk Dystoniforening | www.dystoni.dk pia@dystoni.dk |
| FINLAND | Suomen Dystonia-yhdistys ry | www.dystoniayhdistys.com info@dystoniayhdistys.com |
| FRANCE | AMADYS | www.amadys.fr secretariat.amadys@amadys.fr |
| GERMANY | The Deutsche Dystonie Gesellschaft e.V. (DDG) | www.dystonie.de hedwig.hagg@dystonie.de |
| GERMANY | DFVD e.V. Dystonie Förderverein Deutschland e.V. | www.dystonie-foerderverein.de info@dystonie-foerderverein.de |
| GERMANY | Dystonie und Du (DyD) | www.dysd.de info@dysd.de |
| IRELAND | Dystonia Ireland | www.dystonia.ie info@dystonia.ie |
| ITALY | A.R.D Associazione Italiana per la Ricerca Sulla Distonia | www.distonia.it segreteria@distonia.it info@distonia.it |
| NORWAY | Norsk Dystoniforening | www.dystoni.no kontakt@dystoni.no |
| POLAND | Polskie Stowarzyszenie Osób Chorych na Dystonię | www.dystoniapolska.pl adam.kalinowski@dystoniapolska.pl jacek.partyka@dystoniapolska.pl |
| ROMANIA | Asociatia Children’s Joy | www.distonianational.ro catalinacrainic@yahoo.com distonianational@yahoo.ro |
| SLOVENIA | Društvo bolnikov z distonijo Slovenije | www.distonija.si info@distonija.si |
| SPAIN | ALDE Asociación de Lucha contra la Distonia en España | www.distonia.org alde@distonia.org |
| SPAIN | ALDA Asociación de Lucha Contra la Distonia en Aragón | www.distonia-aragon.org alda@distonia-aragon.org |
| SWEDEN | Svensk Dystoniforening | www.dystoni.se info@dystoni.se |
| SWITZERLAND | Schweizerische Dystonia Gesellscaft | www.dystonie.ch claudia.schmid@dystonie.ch |
| THE NETHERLANDS | Dystonie Vereniging | www.dystonievereniging.nl secretariaat@dystonievereniging.nl |
| UKRAINE | Association Of Patients with Torsion Dystonia Об’єднання Хворих на Торсійну Дистонію | ngo.aptd@gmail.com titova0523@gmail.com |
| UNITED KINGDOM | Dystonia UK | www.dystonia.org.uk info@dystonia.org.uk |
| UNITED KINGDOM | A.D.D.E.R. Action for Dystonia, Diagnosis, Education and Research | www.actionfordystonia.co.uk office@actionfordystonia.co.uk |
Note: If you find incorrect information or know a dystonia organization that is not on our list please contact us: sec@dystonia-europe.org
