What is Collected
The DE website does not store or capture any personal information when someone visits it and is not registered. The system will log your IP address along with other information provided by your browser. This may include the name and version of the browser you are using, your operating system and any website address that referred you to the DE website. This information will only be used for producing anonymous website statistics and will be used to help us with the delivery of the services on the website.
However the system will record personal information if you:
- Provide information by filling in a form on our site
- Subscribe, register or apply for services that require personal information to be given
- Submit an enquiry and give your contact details for us to respond
- Complete surveys that we use for research purposes
Cookies
– What are cookies?
A cookie is a small file which is placed on your computer by a site when you visit it. Basic cookies contain the site name and a unique user ID. The next time you visit that site, your browser checks to see if it has a cookie for it and sends the information contained in that cookie back to the site. The site then ‘knows’ that you have been there before, and can, for example, tailor your experience of the site. More sophisticated cookies allow you to do other things, like create accounts on a site or use an online shop.
– Non-essential cookies
Google Analytics cookies help us to improve your experience of our site but are not essential to its basic functioning. We use these cookies to collect non-personal information about your computer, including, where available, your IP address, operating system and browser type, for system administration purposes and to measure our effectiveness. They also enable us to estimate our audience size and usage patterns. This is statistical data about our users’ browsing actions and patterns and does not identify any individual.
– Third party cookies
Facebook and Twitter cookies are examples of ‘third party’ cookies on our site. If you click a function on our website that is associated with these parties (e.g. to share or tweet a piece of information), they will place cookies on your computer. We do not take responsibility for these cookies, as to make use of these functions you will have already accepted the terms and conditions of use with the relevant party.
We embed videos on our site using YouTube, which sets cookies on your computer once you click on the video player. As you do not have to sign up to YouTube first in order to play these videos, you will not have accepted their terms and conditions. We do not take responsibility for these cookies; to find out more please visit YouTube’s privacy policy.
– Can I refuse cookies?
Yes. You can use a setting on your browser which allows you to refuse to accept cookies. However, if you select this setting you will be unable to use certain parts of our site and it may not work smoothly.
Different browsers have different instructions for managing cookies and you may also be able to accept certain cookies and not others. For example, you may be able to refuse third party cookies.
For more information on cookies see the All About Cookies website.
What we will do with your information
Any information that is collected by Dystonia from this website will only be used for monitoring purposes unless you have given us consent for your information to be used e.g. providing us with your email address so we can contact you, or if you have registered for an event so that we can get back to you. We may, from time to time, send you relevant information about DE and its work, although there will be an option for you to opt out of this at any time.
Profile Pictures Taken with the Phone’s Camera
Our mobile application allows users to upload profile pictures and pictures added to diary notes taken with their phone’s camera. Please be aware that if you choose to upload a picture taken with your phone’s camera, we will only collect the image file and will not collect any additional information that is embedded in the file, such as the date and time the photo was taken, the type of camera used, or the location where the photo was taken. We may use your profile picture to personalize your experience with our mobile application and to add the relevant pictures while generating a report. Please note that if you choose to upload a picture taken with your phone’s camera, you are solely responsible for ensuring that you have the necessary rights and permissions to use and share the photo. By uploading a picture, you grant us a non-exclusive, royalty-free, transferable, sub-licensable, worldwide license to use, modify, and reproduce the photo for the purposes of providing and improving our services. If you have any questions or concerns regarding the collection and use of pictures taken with your phone’s camera, please do not hesitate to contact us.
We will ensure that all personal information supplied is held securely, in accordance with the requirements of General Data Protection Regulation legislation. You can read our full Data Protection Policy here. If you have any queries regarding this please contact us.
Access to information
Any formal, written request by a Data Subject for a copy of their personal data (a Subject Access Request) will be referred, as soon as possible, to the Data Protection Officer, and will be processed as soon as possible.
It is intended that by complying with these guidelines, Dystonia will adhere to best practice regarding the applicable Data Protection legislation.
Changes to our privacy policy
Any changes we may make to our privacy policy in the future will be posted on this page and, where appropriate, notified to you by email.
What if I have questions or concerns?
If you have any questions or concerns regarding privacy using the Services, please send us a detailed message to: privacy@dystonia-europe.org. We will make every effort to resolve your concerns.
