November 8, 2017

Boston Scientific Master Debate in Paris

Almost one hundred dystonia experts and Boston Scientific staff had gathered at the Fillerval Castle north of Paris for the two-day meeting: Boston Scientific International Masters’ Debate: Reshaping the Future of DBS. Presentations followed by debates engaged the participants who contributed to fruitful discussions. Boston Scientific also celebrated its 5th Anniversary since the launch of…

Show this Post ›
October 29, 2017

25th Anniversary of the Danish Dystonia Association

This weekend DDF – the Danish Dystonia Association – celebrated its 25th Anniversary. The organization was founded in 1992 and has today a little more than 600 members. The focus of their work is to raise awareness and inform about dystonia, treatment and research. For this very special celebration about 100 dystonia patients and family members…

Show this Post ›
May 31, 2017

Dystonia Europe 24th General Assembly

The 24th Dystonia Europe General Assembly was held on 12 May at the IBIS Styles Roma Hotel in Rome, Italy. Representatives from 15 of the 21 member organisations were present. They were from: Croatia, Norway, Denmark, Sweden, Finland, the UK, France, Germany, Ireland, Italy, Poland, Switzerland and Romania. President Merete Avery welcomed everybody to the…

Show this Post ›
May 16, 2017

Dr. Niccolò Mencacci Receives the David Marsden Award 2017

Our congratulations to Dr. Niccolò Mencacci and the David Marsden Award 2017 for his paper: “A Missense Mutation in KCTD17 Causes Autosomal Dominant Myoclonus-Dystonia”. Dr Mencacci was presented with the award by Dystonia Europe President Merete Avery at the D-DAYs 2017 held in Rome last weekend. Dr Mencacci expressed his thanks to DE and Ipsen for the…

Show this Post ›