May 31, 2017

Dystonia Europe 24th General Assembly

The 24th Dystonia Europe General Assembly was held on 12 May at the IBIS Styles Roma Hotel in Rome, Italy. Representatives from 15 of the 21 member organisations were present. They were from: Croatia, Norway, Denmark, Sweden, Finland, the UK, France, Germany, Ireland, Italy, Poland, Switzerland and Romania. President Merete Avery welcomed everybody to the…

Show this Post ›
May 16, 2017

Dr. Niccolò Mencacci Receives the David Marsden Award 2017

Our congratulations to Dr. Niccolò Mencacci and the David Marsden Award 2017 for his paper: “A Missense Mutation in KCTD17 Causes Autosomal Dominant Myoclonus-Dystonia”. Dr Mencacci was presented with the award by Dystonia Europe President Merete Avery at the D-DAYs 2017 held in Rome last weekend. Dr Mencacci expressed his thanks to DE and Ipsen for the…

Show this Post ›
March 27, 2017

Governance Workshop & Dystonia Leaders Met in Dublin

A 2-day workshop on Governance was organised by the European Federation of Neurological Associations – EFNA, in Dublin, Ireland last week. It was held alongside the Extra General Assembly and members of the EFNA Board as well as representatives of member organisations from disease areas such as epilepsy, Huntington’s, ADHD, ataxia, Brain tumor and more…

Show this Post ›
March 13, 2017

Norwegian Dystonia Members Annual Meeting 2017 in Trondheim

This weekend the Norwegian Dystonia Association held its Annual Meeting and General Assembly in Trondheim, Norway. Around 40 members (dystonia patients and family members) had come from all over Norway for the 2-day-meeting. President Anniken Hansen welcomed everybody and gave an update of the achievements of the Association over the past year. The 3-year Physiotherapy…

Show this Post ›