United Kingdom – ADDER

Action for Dystonia, Diagnosis, Education and Research – ADDER

 

President: Verona Butler
Chairperson: Mel Moore

Contact:
Kibblesworth Millennium Ctr
Grange Tce
Kibblesworth
Gateshead, NE11 0XN
Tel: +44 191 4922793

Email: adder.adder2@btconnect.com
Website: www.actionfordystonia.co.uk
Facebook: ADDER_Dystonia

ADDER was founded in 1999 and the number of members is now over 500. An Executive Committee of 12 people who have or are married to people with dystonia meets monthly and is supported by a Medical Advisory Board of 6 Doctors.

The latest news can be found on the Facebook page.

A very intensive Epidemiological Survey of Dystonia was started in 1993 with just 147 people and has now been completed after 12 years with over 2100 people within the North East of England.
We are currently working hard to raise £100,000 for the research project to be taken to the next stage.