Germany – DyD

Dystonie-und-Du e.V


Chairman: Volker Kreiss
Contact: Madenburgweg 7b
76187 Karlsruhe
Tel: +49 721 – 75 18 24


On the eleventh of November 2017, 8 people founded the self-help organization “Dystonie-und-Du”. Since February 2018 we have been a non-profit association. We have made it our mission to help people with the disease dystonia, to support them and to communicate with each other. Our motto is: Not alone  – rather together And: not the association, the person affected by the disease is important. 

Five of our six board members are provided with DBS (deep brain stimulation) and therefore the main focus of our association is Deep brain stimulation. 

We also offer our help in social issues. 

We look forward to working with Europe!