Finland

Suomen Dystonia-yhdistys ry

 

Chairman: Jukka Sillanpää
Information secretary: Tommi Kettunen
Contact person: Jukka Sillanpää

E-mail:  info@dystoniayhdistys.com
Tel: +358 40 764 0908

Website: http://www.dystoniayhdistys.com

The Finnish Dystonia Association was founded in 1998 with the aim to provide information about the neurological movement disorder dystonia, and to offer support to those affected by dystonia and their families.

The national association, totally run on a voluntary basis, has now been around for 15 years and relies on the knowledge, proficiency and resources of those volunteering.

The Finnish Dystonia Association has about 800 members and we publish a bulletin informing about our activities every three months. The Association has two phone lines for peer support and these are operated by people affected by dystonia. We have 20 clubs all over Finland.

There is also a forum on the website and facebookpage, where you can ask questions and take part in discussions on any topic related to the disease. Dystonia Days “D-DAYS” are held every year in a different city, to attract all the members. The members can also take part in the activities organised by the umbrella organisation, the Finnish Parkinsons Association.