September 22, 2018

EFNA Meetings in Brussels

Dystonia Europe Executive Director Monika Benson is a Board Member of EFNA. This week she attended its Management Committee Meeting in Brussels. The work of EFNA is concentrated around four pillars: Awareness, Empowerment, Advocacy, Engagement which guide the EFNA Board on what projects and activities to focus on. At the meeting EFNA Executive Director Donna…

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September 1, 2018

Welcome September – Dystonia Awareness Month – #DAM2018

Dystonia Awareness Month 2018 is here. We are happy to welcome you to a month filled with online activities to raise awareness of dystonia. We encourage our members, partners and followers to support us. Throughout the month short videos, photos, facts and information about the dystonia will be published on our social media channels: Instagram,…

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April 22, 2018

Norwegian Dystonia Association 25th Anniversary Celebration

The week after the Dystonia Europe 25th Anniversary events, NDF, the Norwegian Dystonia Association, held its 25thAnniversary celebration and Annual General Assembly at hotel Olavsgaard, just outside of Oslo. 75 dystonia patients and family members from across Norway had come to the event. Saturday morning, after registration, NDF Chairman Johann Arnfinn Warvik, welcomed everybody to a weekend…

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April 14, 2018

Dystonia Europe 25th Anniversary Celebrations and D-DAYs 2018 in Brussels

On 12, 13 and 14 of April the Dystonia Europe 25th Anniversary celebrations took place in Brussels, Belgium with several events and activities.  Dystonia Europe Delegates from 16 member organisations participated and arrived in Brussels already on Thursday. They were from Denmark, Finland, Sweden, Norway, France, Belgium, Ireland, Croatia, Italy, Switzerland, Romania, Germany, Poland.  The…

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