January 15, 2019

Didi Jackson | In Memoriam 

Didi Jackson – in memoriam  Dystonia Europe announces, with great sadness, the passing of our former President, Didi Jackson on 14 February, 2018.  The 1980s and early 1990s were the early days of dystonia becoming better-understood by the medical profession, and it was very difficult for patients to obtain good information and medical advice.  Didi…

Show this Post ›
January 15, 2019

DBS: Effective Therapy for Dystonia Patients  

DBS: Effective Therapy for Dystonia Patients     Interview with Professor Andrea Kühn from the  Charité, University Hospital in Berlin, Germany  The Charité University Medicine in Berlin is Europe’s largest university hospital and offers a comprehensive treatment spectrum at the forefront of medical care for patients from all over the world. One of the clinic’s…

Show this Post ›
January 15, 2019

Norway | Norwegian Dystonia Association 25 years

Norway The week after the Dystonia Europe 25th Anniversary events, NDF, the Norwegian Dystonia Association, held its 25th Anniversary celebration and Annual General Assembly at hotel Olavsgaard, just outside of Oslo.  75 dystonia patients and family members from across Norway had come to the event.  Saturday morning, after registration, NDF Chairman Johann Arnfinn Warvik, welcomed…

Show this Post ›
January 15, 2019

Annual Meeting of the Associazione Italiana per la Ricerca sulla Distonia   

On February 3, 2018 A.R.D. held its annual meeting, hosted by Professor  Alberto Albanese at the “Istituto Ospedaliero Humanitas” in Rozzano near Milan.  Usually our annual meeting is divided into two parts. During the first part in the morning some speakers illustrate some different aspects of dystonia. After the lunch break the General assembly for…

Show this Post ›