January 15, 2019

DBS: Effective Therapy for Dystonia Patients  

Interview with Professor Andrea Kühn from the  Charité, University Hospital in Berlin, Germany  The Charité University Medicine in Berlin is Europe’s largest university hospital and offers a comprehensive treatment spectrum at the forefront of medical care for patients from all over the world. One of the clinic’s focuses is the treatment of patients with movement…

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January 15, 2019

Annual Meeting of the Associazione Italiana per la Ricerca sulla Distonia   

On February 3, 2018 A.R.D. held its annual meeting, hosted by Professor  Alberto Albanese at the “Istituto Ospedaliero Humanitas” in Rozzano near Milan.  Usually our annual meeting is divided into two parts. During the first part in the morning some speakers illustrate some different aspects of dystonia. After the lunch break the General assembly for…

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January 15, 2019

Italy | Run 4 Dystonia in Milan 

On April 8 the 18th edition of the Milan Marathon took place on a warm and sunny spring Sunday. It consisted of 2 different races, with the same itinerary of 42 Km. : one classic agonistic  marathon and a relay race organized by Charity Program, a great solidarity project created and supported by Milano Marathon…

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January 15, 2019

Germany | Dystonie-und-Du 

On October 14 2017, former members of the self-help group Mannheim / Ludwigshafen decided to found a new SHG: the group Rhein / Neckar. At the same time, the plan to create a new association for people suffering from dystonia matured.   Finally, on November 11, Evelyn & Volker Kreiss, Elke & Horst Roth, Susanne &…

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