Merete was appoined to the board of Dystonia Europe in 2013, where she has been serving as the Secretary. After the last General Assembly in Rotterdam, Merete was appointed President of Dystonia Europe. She was diagnosed with cervical dystonia in 2006 and she was Chairwoman of the Norwegian Dystonia Association from 2010-2013. In 2013 she was elected Secretary to the Norwegian Dystonia Board. Merete works with clerical work and customer service for a company in Molde, Norway.