EU Commissioner on Health Vytenis Andriukaitis (Lithuania) joined the dystonia awareness campaign Jump for Dystonia last week at the EU Parliament in Strasbourg and made a jump for dystonia to help raise awareness.
The event was hosted by MEP Glennis Willis who said: ‘I am delighted to help raise awareness of this little known brain disorder if this can help to combat the stigma and isolation felt by people with dystonia. Raising awareness can also be the key to earlier diagnosis and treatment that is why I am supporting Dystonia Europe’s call to Jump for Dystonia in Strasbourg on 25 & 26 November.”
“There is still a lot of misunderstanding about dystonia’ said Robert Scholten, president of Dystonia Europe ‘Dystonia is chronic but the majority of dystonias do not affect other brain functions. There is a lot going on and I invite all MEPs to join in this exciting journey to work for improved public awareness of dystonia, better treatments, increased research and one day, hopefully a cure. Together we can make a real difference for people affected by this devastating disease.’
The event was very successful and MEPs from Belgium, Croatia, Finland, France, Germany, Italy, Ireland, Poland, Romania, Slovakia, Spain, Sweden, The UK, The Netherlands participated and jumped for dystonia to help raise public awareness, combat stigma and isolation, improve treatments and increase research.
Thank you to all who participated.